Risky Genes Awareness Program

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HBOC SYNDROME = RISKY GENES

Families affected by risky genes have far more cancer, at younger ages and it tends to be more aggressive.  There is also research that shows subsequent generations are being diagnosed earlier.  There is no time to lose.

Graph_Cancer Risk Gen vs HBOC

Up to 1/2 million Canadians are estimated to carry risky genes.  This is a shocking 3-5 times more than are affected by multiple sclerosis yet, despite the condition being known for over 20 years, awareness is still so low that up to 80% of those affected still don’t know it so do not have access to early screening and prevention options as recommended by our health care systems.

graph_rg-vs-ms

About 10% of all breast and prostate cancer is hereditary and at least 15% of all ovarian cancer.  Why is awareness still so low when there are large cancer organizations representing each of these?  We are not sure, but we do know the following commercials recently produced for the Risky Genes Awareness Program most likely represent the first of their kind.

Please share – you may save a life!

Lack of awareness also affects funding for this cause.

Lack of funding affects the level of available services and research.

Lack of services and research affects quality of care.

The Risky Genes Program aims to:

1. help find the many thousands of people that do not yet know they carry risky genes to provide them with the tools they need to save their lives;
2. provide a framework for existing risky gene carriers to become involved, and;
3. garner public support for new and existing programs specifically targeted to hereditary cancer.

There are so many ways to help.  If you would like to be involved in any of the following ways, please contact us.

  • funding
  • marketing & promotion
  • AV services
  • telling your story from a risky gene carrier’s perspective
  • telling your story from a family member’s perspective
  • telling your story from a medical professional’s perspective
  • sharing existing risky genes commercials with your social media contacts

riskygenestransparent

LEARN MORE:  RISKY GENES WEBSITE

 

 

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